Rare disease

When eating becomes the biggest challenge

February 29 is Rare Disease Day. 14-year-old Emilia, for example, suffers from a metabolic disorder that requires a special diet. Around 15 people across Austria are affected. To prevent Emilia from developing severe symptoms, she has to follow a very special diet. A major challenge.

Emilia starts every day with a glass of oil. This is not a trendy lifestyle diet, but a medical necessity. The 14-year-old was diagnosed with GLUT1 deficiency syndrome at the age of six.